Clinical Trial: Survey of Current Management of Orthopaedic Complications in CMT Patients
Study Status: Completed
Recruit Status: Completed
Study Type: Observational
Official Title: Survey of Current Management of Orthopaedic Complications in Charcot Marie Tooth Disease Patients
Brief Summary:
Charcot-Marie-Tooth (CMT) disease is the most common inherited peripheral neuropathy. Foot deformities are frequent complications in CMT patients and orthopaedic surgery is often required. As yet there are no systematic studies on the management of orthopaedic complications in CMT patients and the current approach varies between centres. This study is a survey with the aim of understanding the current surgical approach to orthopaedic complications in CMT.
The target population includes orthopaedic surgeons who perform surgical procedures for foot deformities in CMT patients attending centres participating in the Inherited Neuropathies Consortium (INC).
Detailed Summary:
The study protocol consists of a survey addressed to orthopaedic surgeons. The survey will be completed once and it includes two different scenarios of typical CMT patients (one adult and one child).
The orthopaedic surgeons will be asked which surgical procedures they would apply to each scenario:
- forefoot cavus,
- clawtoes and
- hindfoot varus
No medications or therapeutic agents are a component of this project.
Sponsor: University College London Hospitals
Current Primary Outcome: Procedural correlations among orthopaedic surgeons on management of foot deformities in CMT patients [ Time Frame: 1 day ]
Original Primary Outcome: Same as current
Current Secondary Outcome:
Original Secondary Outcome:
Information By: University College London Hospitals
Dates:
Date Received: November 27, 2013
Date Started: February 2013
Date Completion:
Last Updated: January 29, 2015
Last Verified: January 2015
