Clinical Trial: Case Notes Review on Patients With Hereditary Haemorrhagic Telangiectasia
Study Status: Recruiting
Recruit Status: Recruiting
Study Type: Observational
Official Title: Hammersmith Hospital Patients With Pulmonary Arteriovenous Malformations (PAVMs) and Hereditary Haemorrhagic Telangiectasia
Brief Summary: The Hammersmith Hospital provides a clinical service for patients with Hereditary haemorrhagic telangiectasia and pulmonary arteriovenous malformations that is unique in the United Kingdom. Measurements obtained as part of standard clinical practice that has evolved since 1985 allow us to assess whether particular groups of individuals that we see are more prone to recognised complications such as strokes, brain abscesses, pregnancy related complications or pulmonary hypertension. We hypothesise that certain clinical characteristics will predict the susceptibility of individuals to particular complications.
Detailed Summary:
Sponsor: Imperial College London
Current Primary Outcome:
- Stroke [ Time Frame: Prospective ]
- Venous thromboemboli (VTE) [ Time Frame: Prospective ]
Original Primary Outcome:
Current Secondary Outcome:
Original Secondary Outcome:
Information By: Imperial College London
Dates:
Date Received: September 29, 2005
Date Started: January 2000
Date Completion: January 2018
Last Updated: May 28, 2015
Last Verified: August 2008
