Clinical Trial: Medical Record Review of Hypohidrotic Ectodermal Dysplasia Clinical Phenotype

Study Status: Completed
Recruit Status: Completed
Study Type: Observational

Official Title: Medical Record Review of Hypohidrotic Ectodermal Dysplasia Clinical Phenotype

Brief Summary: This study is being done to collect information about people who have or may have Hypohidrotic Ectodermal Dysplasia (HED) or X-linked Hypohidrotic Ectodermal Dysplasia (XLHED). This study will allow Edimer Pharmaceuticals to know more about HED/XLHED so that hopefully the investigators can develop a drug to treat this condition. In this study Edimer will retrospectively review and abstract (summarize) medical records of people that have or may have HED/XLHED in order to further understand the natural history and disease characteristics.

Detailed Summary:
Sponsor: Edimer Pharmaceuticals

Current Primary Outcome:

Original Primary Outcome:

Current Secondary Outcome:

Original Secondary Outcome:

Information By: Edimer Pharmaceuticals

Dates:
Date Received: July 19, 2011
Date Started: April 2011
Date Completion:
Last Updated: June 26, 2012
Last Verified: June 2012