Clinical Trial: A Long Term Follow up Study in Late-onset Pompe Disease
Study Status: Recruiting
Recruit Status: Recruiting
Study Type: Observational
Official Title: A Long Term Follow up Study in Late-onset Pompe Disease
Brief Summary: This study is to observe the progression of disease in late-onset Pompe disease
Detailed Summary:
Sponsor: National Taiwan University Hospital
Current Primary Outcome: all muscle function [ Time Frame: 10 years ]
Original Primary Outcome: Same as current
Current Secondary Outcome:
Original Secondary Outcome:
Information By: National Taiwan University Hospital
Dates:
Date Received: July 9, 2008
Date Started: May 2008
Date Completion: December 2018
Last Updated: December 3, 2013
Last Verified: December 2013