Clinical Trial: A Long Term Follow up Study in Late-onset Pompe Disease

Study Status: Recruiting
Recruit Status: Recruiting
Study Type: Observational

Official Title: A Long Term Follow up Study in Late-onset Pompe Disease

Brief Summary: This study is to observe the progression of disease in late-onset Pompe disease

Detailed Summary:
Sponsor: National Taiwan University Hospital

Current Primary Outcome: all muscle function [ Time Frame: 10 years ]

Original Primary Outcome: Same as current

Current Secondary Outcome:

Original Secondary Outcome:

Information By: National Taiwan University Hospital

Dates:
Date Received: July 9, 2008
Date Started: May 2008
Date Completion: December 2018
Last Updated: December 3, 2013
Last Verified: December 2013