Clinical Trial: "Family-centered" Pediatric Rehabilitation Services in Children With Developmental Disabilities

Study Status: Completed
Recruit Status: Completed
Study Type: Observational

Official Title: Investigation of "Family-centered" Pediatric Rehabilitation Services Received by Children With Developmental Disabilities

Brief Summary:

Developmental disability is a severe chronic disabled condition caused by mental or physical impairments. Children with developmental disabilities may face life-long difficulties in motor functioning, self-care, condition, communication, and independent living. They often receive rehabilitation services to promote daily functions and participation in home, school, and community lives.

"Family-centered" service has been considered as "best practice" in pediatric rehabilitation. Therapists encourage children with developmental disabilities and their parents to participate in decision making and implementing process of intervention, and provide intervention plan that best fit their family needs. Research shows that for children with developmental disabilities, family-centered services can enhance children's development, decrease parenting stress, promote emotional wellness, and increase parental satisfaction to services. Though the "family-centered" concept has been considered as relevant in pediatric rehabilitation, there are still difficulties, as well as a lack of evidence regarding its implementation in practice.

Reflecting the trend of family-centered medical care, the benefits of national health insurance in Taiwan for early intervention outpatient care will emphasize on family-centered intervention. The range of benefits may include communication with parents, parental education, consultation and instructions for home programs. Besides, outcomes of family-centered intervention will be treated as an important index for monitoring the quality of medical services.

Given that there is a lack of investigation regarding the family-centered pediatric rehabilitation, the purposes of this one-year research project are to investigate the implementati

Detailed Summary:
Sponsor: Chang Gung University

Current Primary Outcome: The Measure of Processes of Care-20 [ Time Frame: 1 year ]

Original Primary Outcome: Same as current

Current Secondary Outcome:

  • Measure of Processes of Care- for Service Providers [ Time Frame: 1 year ]
  • Children and Adolescent Factor Inventory [ Time Frame: 1 year ]
  • Assessment of Preschool Children's Participation (APCP) [ Time Frame: 1 year ]
  • Children's Assessment of Participation and Enjoyment (CAPE) [ Time Frame: 1 year ]


Original Secondary Outcome: Same as current

Information By: Chang Gung University

Dates:
Date Received: December 22, 2013
Date Started: January 2014
Date Completion:
Last Updated: February 8, 2015
Last Verified: February 2015