Clinical Trial: Natural History of Cherubism Observational Study

Study Status: Completed
Recruit Status: Completed
Study Type: Observational

Official Title: Natural Hisotry of Cherubism Observational Study

Brief Summary: To observe the natural history of cherubism.

Detailed Summary: The investigators will take a history and examine patients with cherubism to determine the natural history of the disease. The investigators also may take skin or blood samples (IRB approved 7256) from patients to learn more about this disorder.
Sponsor: The Cleveland Clinic

Current Primary Outcome: Disease progression [ Time Frame: 10 years ]

We will take a history and examine patients with cherubism and look for disease progression.


Original Primary Outcome: Same as current

Current Secondary Outcome:

  • patient growth [ Time Frame: 10 years ]
    We will measure height and weight
  • bone abnormalities [ Time Frame: 10 years ]
    We will take panorex radiographs.


Original Secondary Outcome: Same as current

Information By: The Cleveland Clinic

Dates:
Date Received: July 25, 2013
Date Started: July 2013
Date Completion:
Last Updated: January 6, 2017
Last Verified: January 2017