Clinical Trial: Characteristics and Outcomes of Childhood Moyamoya in the UK

Study Status: Recruiting
Recruit Status: Unknown status
Study Type: Observational

Official Title: Characteristics and Outcomes of Childhood Moyamoya in the UK

Brief Summary: This is a study to ascertain the number of children with moyamoya in the UK, their presenting features, clinical course and outcomes.

Detailed Summary:

The study ahs 3 components:

  1. Patient identification via the British Paediatric Surveillance Unit, and the 21 collaborating centres
  2. Record review/patient interview to determine clinical features & outcomes
  3. Centralised review of imaging data to ascertain radiological phenotypes

Sponsor: Great Ormond Street Hospital for Children NHS Foundation Trust

Current Primary Outcome: Number of children with moyamoya in UK [ Time Frame: 2 years ]

Original Primary Outcome: Same as current

Current Secondary Outcome:

  • clinical features & outcomes of childhood moyamoya [ Time Frame: 2 years ]
  • radioplogical features of childhood Moyamoya [ Time Frame: 2 years ]


Original Secondary Outcome: Same as current

Information By: Great Ormond Street Hospital for Children NHS Foundation Trust

Dates:
Date Received: April 30, 2015
Date Started: August 2014
Date Completion: August 2016
Last Updated: May 4, 2015
Last Verified: April 2015