Clinical Trial: The National Amyotrophic Lateral Sclerosis Registry

Study Status: Recruiting
Recruit Status: Recruiting
Study Type: Observational [Patient Registry]

Official Title: The National Amyotrophic Lateral Sclerosis Registry

Brief Summary: The purpose of this registry is to (A) better describe the incidence and prevalence of Amyotrophic Lateral Sclerosis (ALS) in the United States;(B) examine appropriate factors, such as environmental and occupational, that may be associated with the disease; (C) better outline key demographic factors (such as age, race or ethnicity, gender, and family history of individuals who are diagnosed with the disease) associated with the disease; and (D) better examine the connection between ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.

Detailed Summary:
Sponsor: Centers for Disease Control and Prevention

Current Primary Outcome: The National Amyotrophic Lateral Sclerosis (ALS) Registry [ Time Frame: 1 year ]

To determine the incidence and prevalence of Amyotrophic Lateral Sclerosis in the US.


Original Primary Outcome: The National Amyotrophic Lateral Sclerosis (ALS) Registry [ Time Frame: ongoing ]

To determine the incidence and prevalence of Amyotrophic Lateral Sclerosis in the US.


Current Secondary Outcome: Risk factors of ALS [ Time Frame: 1 year ]

To learn more about the potential risk factors for ALS


Original Secondary Outcome:

Information By: Centers for Disease Control and Prevention

Dates:
Date Received: January 17, 2013
Date Started: October 2010
Date Completion: December 2020
Last Updated: August 8, 2016
Last Verified: July 2015