Clinical Trial: Amyotrophic Lateral Sclerosis Web Based Patient Care Database: ALSConnection.Org

Study Status: Completed
Recruit Status: Completed
Study Type: Observational

Official Title: Amyotrophic Lateral Sclerosis Web Based Patient Care Database

Brief Summary: The purpose is to collect data for ALS research. The data will be used to learn more about the origin of ALS and to improve quality of care for people with ALS. The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research.

Detailed Summary:

Any person who has been diagnosed with ALS by a physician can enroll into this registry.

The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research. An additional focus of this website will be to educate participating patients and visitors to this site about ongoing ALS research.

Sponsor: Forbes Norris MDA/ALS Research Center

Current Primary Outcome:

Original Primary Outcome:

Current Secondary Outcome:

Original Secondary Outcome:

Information By: Forbes Norris MDA/ALS Research Center

Dates:
Date Received: March 10, 2006
Date Started: January 2006
Date Completion:
Last Updated: March 1, 2010
Last Verified: February 2010